Aplicación del proceso de atención de enfermería en paciente con osteogénesis imperfecta, discapacidad física del 80% y discriminación escolar

Abstract

The present clinical case, deals with the study of an 11-year-old female patient diagnosed with Osteogenesis Imperfecta, 80% physical disability, being a victim of school discrimination, due to ignorance of her clinical condition, has also been excluded from activities recreational due to fear and lack of experience of handling children with different abilities, this was analyzed through the application of a survey of nine questions to twenty-three teachers of the "Galo Plaza Lasso Educational Unit", subsequently tabulated through the base of the statistical software SPSS. Osteogenesis imperfecta is an inherited disorder, genetically heterogeneous, generating a deficient production of type I collagen, different studies have shown that 10% of cases are due to autosomal recessive mutations and 90% are the result of autosomal dominant mutations, with a prevalence 1 case for every 12,000 to 15,000 births, presents a great clinical variability; Accentuated by bone fragility by increasing the occurrence of frequent fractures due to trauma, short stature, progressive skeletal deformities, ligamentous-articular hyperlaxity, muscle weakness, impaired motor development and functional capacity, among others. The objective of this research is to apply the nursing care process, based on the Nola Pender health promotion model and the Jean Watson humanitarian care model aimed at reducing the deterioration of the patient's functional capacity. Nola Pender states that the behavior is motivated by the desire to achieve well-being and human potential, while Jean Watson states that the patient must face and adapt to the health-disease process, after creating a transpersonal link with the health professional or his carer.